To whom it may concern

My niece has recently given birth to a baby with progeria condition in Samoa. Due to the lack of information in relation to progeria condition people's opinions weren't directly aimed medically but to the point where they thought that baby was under some sort of evil spell. As a result both mother and son were removed from the village as the extended family members felt that there was nothing they could do to help the mother and baby.
I went to Samoa and witnessed for myself that my nephew had all the features of progeria.

At the moment i am supporting my niece financially in the last past months, as the government is a bit slow with the paper work and what to do to help out.

I just wanted to find out what could be the best option to do. Both niece and baby are still in Samoa at this current stage. I believe without doubt that this was the only progerian child in the whole of Samoa, but due to the lack of information and awareness some medical people are not ignoring the fact, due to the premature life span of progeria.

Thank you for your support.

Kind regards

Ina