1. My disease as well. Very rare and no cure or treatment, extremely painful
    Heather Robichaud Heather Robichaud United States says:
    January 9, 2025 at 5:54 PM

    My disease as well. Very rare and no cure or treatment, extremely painful 24/7. It has taken my whole life away and then some. I habe SFN( small fiber neuropathy) Idiopathic. It attacks your whole body inside out from your toes to your eyelashes. And again just like you both It never shows up on a list, there are no ribbons etc for awareness or clinical trails for medications. Pain medication can give you about 30% relief at times but that's about it. I've yet to see any relief just going down hill day by day hour by hour. Sending prayer to you both. ❤️🙏🏻

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