1. Drspeedy Andme Drspeedy Andme Germany says:

    Sad to see that Professor Trudie Chalder continues to do what she does best, telling nonsense about a debilitating neuro immune disease in your article called: "Exercise and chronic fatigue syndrome: an interview with Professor Trudie Chalder"

    She "forgot" to tell you that they used the Oxford criteria in the PACEtrial which we're designed so that they can select patients who do NOT have the disease.

    Or as the American p2p recently stated about these criteria:
    "The Oxford criteria (published in the Journal of the Royal Society of Medicine in February 1991) are flawed and include people with other conditions, confounding the ability to interpret the science.”

    Its like doing research on patients with Cancer but then selecting patients who are depressed etc so that you can proclaim that exercise and behavioral therapy are effective. Which is just total nonsense.

    The CFSAC (a federal advisory committee chartered by the US Dep't of Health & Human Services) has now (January 2015) called for studies using the Oxford criteria NOT to be used anymore. Which means that the PACEtrial and its flawed conclusions should be binned.

    On the 14th of january 2015 the PACE trial authors published their secondary mediation article in the lancet psychiatry and their conclusion was:
    "Our main finding was that fear avoidance beliefs were the strongest mediator for both CBT and GET. Changes in both beliefs and behaviour mediated the effects of both CBT and GET, but more so for GET. The results support a treatment model in which both beliefs and behaviour play a part in perpetuating fatigue and disability in chronic fatigue syndrome."
    image.thelancet.com/.../abstract

    On the 29th of january the PACE trial authors responded to the following article in the BMJ ("Tackling fears about exercise is important for ME treatment, analysis indicatesBMJ 2015; 350 doi: http://dx.doi.org/10.1136/bmj.h227

    (Published 14 January 2015)") stating in their rapid response:
    "Nor did we say that fear of exercise in CFS was “irrational”." and:
    "in an illness where exercise increases symptoms".
    http://www.bmj.com/content/350/bmj.h227/rr-24

    So hardly 2 weeks later they did some serious back peddling in the bmj. Making it very clear that when they published their article in the lancet they already knew that fear avoidance was just a load of nonsense and also that exercise therapy actually makes things worse !!

    So for the first time ever they have acknowledged that exercise therapy is harmful in ME/CFS. And as you know harmful therapy should not be used and contravenes the do NO harm principle of the GMC.

    Sadly she forgets all this when talking to you. But that is what these psychiatrists have been doing for decades, everything which shows that their believes, for which they do not have any evidence; why because it doesn't exist, is totally ignored.

    I think it's very sad that she "forgot" to mention her own rapid response in the BMJ when talking to you, it also shows that these psychiatrists want to make sure at every cost that no one realises that ME is a debilitating physical disease.

    She also ignores their own research that shows that exercise causes immunological damage / abnormalities in ME.
    niceguidelines.blogspot.com/.../...e-exercise.html

    Furthermore exercise physiologist professor VanNess and others have clearly shown that two day exercise testing clearly shows there are underlying physical abnormalities.
    Exercise physiologist Prof VanNess responds to the preposterous idea that ME patients remain severely, physically debilitated due to an irrational 'fear of exercise'
    niceguidelines.blogspot.com/.../...of-vanness.html

    Exercise physiologist Professor Keller has now issued her response as well:
    "Given what we have learned in the past eight years about this illness, it is intellectually embarrassing to suggest that ME is a psychological illness".
    niceguidelines.blogspot.com/.../...ellerit-is.html

    And that you cannot exercise your way out of this disease. And when you can you either do not have the disease or the disease has gone into remission which only happens in about 5% of patients.

    And as you know exercise physiologists use exercise testing to measure things in patients, psychiatrist don't. And all the objective tests as mentioned in the PACEtrial protocol, like the 6 minute walking test,   wearing an actometer for a week etc were all ignored by the final article as the results were so bad. As someone noted on facebook, if this had been done in the world of sport, this would have been called game fixing.

    If you read the recent IOM report (February 2015), it clearly states that "there is no effective treatment" and "being subjected to treatment strategies that exacerbate their symptoms." and also that ME "is a medical—not a psychiatric or psychological—illness."
    http://www.ncbi.nlm.nih.gov/pubmed/25695122

    If the psychiatrists had done their job as a doctor we would have had proper treatment 10 - 15 years ago and I would have long been back to work; as it is patients who are severely ill are left to rot by psychiatrists. Disgraceful doctoring.

    You probably know that the Norwegian study by oncologist professor Mella etc with the cancer drug Rituximab suggests that ME is an autoimmune disease. That and thousands of other research articles that show that ME is a physical disease are ignored by these psychiatrists and as you know doctors should not ignore evidence.

    So no wonder these psychiatrists are called Pinocchio Psychiatrists on the Internet.

    So please rectify your article and pray that you do not get this very debilitating disease yourself because if you do just like me you're then in for a big shock because the actual disease has no relevance to what these psychiatrist have been saying about it for decades.

    Sincerely,

    Dr Speedy, a doctor who has been bedridden with severe ME, thanks to a major relapse caused by very harmful graded exercise therapy which breaches the do NO harm principle of the GMC. Doctors who continue to use these harmful therapies should fail their revalidation and more ...

    PS: the same day that this article was published, an article was published in naked science with the title is ME an autoimmune disease ?

    We all know that exercise and psycho blah blah are not effective treatments for autoimmune diseases just like they are not effective treatments for cancer, heart disease etc. They are just ways to blame the patients and fob them off.

The opinions expressed here are the views of the writer and do not necessarily reflect the views and opinions of News Medical.
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