1. hallerverdon-spatz
    april maharrey april maharrey United States says:
    August 20, 2012 at 10:35 AM

    I commend all of you and the research you do... my daughter was diagnosed with hallervorden-spats, she passed away June 24,2011 at the age of 11... I hope and pray every day that one day there will be a cure for this disorder so no family child has to suffer the way me and my family and daughter had to suffer... its not something I would wish for any family to go thru... thank you for all you guys are doing to better understand this disorder...

    Reply
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