1. Cimetidine has really helped my child!
    Jessica Cole Jessica Cole United States says:
    December 3, 2014 at 9:31 PM

    My son was diagnosed with PFAPA in July 2013 at Seattle Children's Rheumatology.  Since, he has taken Cimetidine orally every 12 hours.  He didn't miss any school in 2013-2014 due to PFAPA!  Year prior, 27 days missed.  Cimetidine has worked wonders and changed his life.  After 6 months on Cimetidine 2 times daily, we started tapering down, eliminating a dose per month.  When we were down to 7 doses weekly, we had an 3 episodes in 3 days, even prednisone wasn't helping much.  So we sit at 9 doses a week, and have been healthy for 3 months.  this is so hard to deal with I really do understand.  Sincerely, Jessica

    Reply
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