1. opioid's are useless to fibromyalgia patients is a crook!
    Tammy Stork Tammy Stork Canada says:
    June 8, 2015 at 9:11 AM

    I have been diagnosed with fibromyalgia for 5 years now!  And for 4 out of the 5 years been on a 12 hour morphine narcotic!  Along with trying to stay as active as I can, has been my only sense of relief! Don't let any doctor tell you narcotics aren't the proper treatment for fibromyalgia!  I have never ever went up in my dosages in these 4 years, as long as you use the narcotics in a responsible way, they will not hurt you! It's better than taking over the counter pain killers, as they will destroy your liver! Long acting morphine have no effect to your liver, and as long as you don't abuse the narcotic you will have a better quality of life! I take mine at about 5am and then again at about 5pm, as you see no going up and down in your oain management.  But you must try to stay active! I have tried every kind of exercise routine,  and none really decrease the pain level, just stay active by moving around, and don't stay in bed all day, get up and do little bits of things throughout the day. You'll learn what is good for you, and when to stop and rest! Good luck everyone with learning to cope with this awful syndrome!  Gentle hugzzzz everyone!

    Reply
    • Karen Augustine on Fibromyalgia now considered as a lifelong central nervous system disorder
      Karen Augustine Karen Augustine United States says:
      June 11, 2015 at 10:06 AM

      I completely agree with every word of your posting. I would not be able to even get out of bed without my opiate pain med. I too, have been on my pain medication for four years, along with Gabapentin, and I would never dream of abusing them. I have a wonderful pain management doctor that I see every four weeks and they monitor my pain med use very closely. I suffer with fibro, crps, osteoarthritis and many other fibro related symptoms. I do not understand how these doctors can say that opiates are not effective in the treatment of fibro. Unless they have it they do not understand it. Good luck to you too and very gentle hugs back!

      Reply
      • ?
        carrie Patterson carrie Patterson United States says:
        January 10, 2023 at 10:59 AM

        I also have CRPS. I was just wondering how it was diagnosed. And what treatments have you had, and what meds have you had to treat it? If you don’t mind me asking.

        Reply
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