1. Fibromyalgia treatment
    Rhoda Rhoda Canada says:
    October 4, 2012 at 7:49 PM

    Hello,

    I contracted fibromyalgia after an operation.  It started with extreme fatigue and then the pain set in, especially in my legs/knee areas.

    It go so bad that I could not work effectively.  I have been granted ODSP, however, that is not much compensation, and I feel I could likely work part time, which is allowed with ODSP- however you can only make a percentage of your monthly allowance.

    I am currently being treated with Fentanyl patches, which are remarkable.  I tried Lyrica, and found that I was dropping things and not in control of my hands and arms-that drug was a terrible experience for me.  The Fentanyl 50 mcg is working, with me not working, I may need more if I were to take a part time job.

    I don't believe I could effectively return to work full time unless the job was one of low low stress-and then I might need more Fentanyl in case I started developing pain.

    This is a terrible illness, and I hope they research the origins and find a cure.

    Reply
    • one day at a time
      sueUK sueUK United Kingdom says:
      October 6, 2012 at 6:09 PM

      Hi,Rhoda
      Ive had FM for 7 years now  but only just been diagnosed a few months ago after having years of being told it was my age/Menopause/Hormones/nuerotic!  I find Fentalyn works for me aswell but I do have a neck injury that causes me extra pain aswell as the fibro pain, I've also tried Gabapentine (got stomach pains and put on 28LBs weight)& Pregabatin (did nothing).
      There are so many sites out there , it so confusing esp. if you have a Fibro/drugs/lack of sleep fog. Alot of info is on USA sites as I think the UK is still in the dark ages with FM as in "its all in the mind they say"!! so difficult! I'm looking into The Marshall Protocol, USA based.Also Dr Andrew Holman USA has found alot of FM sufferes have PC3= Positional Cord Compression in neck and not diagnosed and can mimmick FM symptoms! thou you can still have both aswell.you need to have MRI taken with your neck bent not straight! Also CoQ10 Supplementation? and a Dr Theoharides 2012 study Quercetin and Luteolin (Neuroprotek formular)but a specific one for FM is in the making and exspected soon according to his site,I have been advised by a forum that his is the best! and not to use others.  dont know if any of this is any interest to you but its always handy share as it might help others. Also Vit D Supplements are supposed to be bad for you even thou I had a low vit D count! also a known thing with FM, but 1 thing at a time as a human guinea pig and not mega rich either as all these things cost. At the mo i'm trying taking Anti histamins Ketotifen as of 4th Oct.thou v.small doses to see if helps! I dont know if you do much research but hope thi might be of interesst,its worth trying to keep a eye on things as UK doctors are not informed and I end up telling them as they really dont seem interested and only want to give you anti depressants to get you out of the surgery as quick as possible. If only they could be in our shoes for a week they would soon change their tune! Keep trying,Good Luck with a P/T Job.

      Reply
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