1. Loraine Harnisch Loraine Harnisch United States says:

    It is exactly this attitude that cost me 2.5 years of my life. After moving in July 2020 I resumed care at the practice I had been previously working with in Illinois.  During the 8 years in Alabama,  I worked with my physician carefully reducing my opioid dosage to the minimum required for adequate pain management. I was able to take walks maintain my household responsibilities such as shopping,  cooking,  laundry,  etc. Upon returning to Illinois my medication regimen was reduced by 50% from 60 mmeq daily (30 mmeq extended release and 30 mmeq immediate release.) to 30mmeq daily immediate release only. I steadily lost muscle tone, strength, and stamina which at 63 is not easy to recover.  I became less and less functional and eventually,  unable to find a pain management doctor who would restore my stable, carefully planned regimen, I became extremely depressed and suicidal.  Once I was able to obtain different insurance at 65, I was able to begin over again with a caring, compassionate physician who is using a combination of opioid treatment with both extended and immediate release medications in conjunction with facet injections and aspirin to target the inflammation.  I have other medical issues that prevent me from using NSAIDS or antidepressants. And after seeing this physician, 6 months later I am beginning to feel that there is hope that I will once again be able to resume the basic activities and responsibilities that define what having a good quality of life means to me.  I am even able to visit with my granddaughters for more than 30 minutes which had become impossible.

    I lost everything when my opioid regimen was cut. I am a knowledgeable,  responsible and compliant patient who has been in pain management since 2007. I dealt with, survived and corrected the rampant overprescribing Oxycontin period where it was a miracle that I didn't end up an overdose victim.  I willingly welcome my physician's input and recommendations however my opioid use is stable and coupled with reasonable physical activity I have a good life. Your attempt to regulate treatment regimens using a one size fits all mentality without any accommodations for stable,  long term patients with managed pain using opiods in conjunction with appropriate additional targeted therapies is destroying lives needlessly.  Many patients who are older, such as myself,  get the clear message that if we csn deal with the new guidelines we should have the sense to sit or lay in bed and wait to stop breathing.

    If opioids are working and are not being abused,  patients being effectively treated with an opioid based regimen should be allowed to have a life and not suffer needlessly day in and day out,  waiting for their suffering to end.

    What you've done is grouped pain management patients in with people who are suffering from a substance abuse disorder.  You create an environment of refill instability which causes pain patients to demonstrate many behaviors that are difficult to distinguish from drug seeking behavior in an addict.  You have destroyed the hopes and lives of so many. And although the CDC went to great lengths explaining that these guidelines were not to be applied across the board to chronic pain patients who had stable,  effective regimens in place, nowhere in the new guidelines is caution to physicians included for such patients.  No where is it acknowledged that achieving an effective pain management regimen that allows for a reasonably good quality of life takes time and months of collaboration between the patient and the physician and that disruption of such a regimen can and does destroy both physical and psychological well being.

    It appears that once again,  the ability of the physician to develop an individualized, effective pain management regimen has been unforgivably interfered with and ultimately the decisions regarding the most appropriate treatment options are being dictated by governmental agencies and non-clinical medical professionals who have no interaction at all with the patients involved. Their primary concern is not patient wellbeing and improved quality of life,  but adherence to politically and socially acceptable guidelines.

    You have implemented so many reporting requirements that doctors often refuse to consider opioid therapy,  even in patients with long standing regimens,  for fear of accidental document violations in an extremely demanding, fast paced clinical environment.

    I had hoped you would correct the mistakes made with your first set of guidelines.  No I simply pray that my current doctor doesn't retire until after I die.

    • vicki auer vicki auer United States says:

      I think your comments are very well written.  I, like you, have been on pain management for many years.  I am 72 and pain has become a part of life, but so far has been manageable with opioids, and injections and physical therapy when needed.  I mainly deal with nerve damage from a shoulder dislocation 10 years ago, and back pain which extends down my legs.  I have a wonderful pain management doctor who has worked with me for years.  We have tried all types of medications typically for nerve pain and they don’t work for me.  I tried Lyrica for a while which did have a little benefit, but caused quick weight gain, which I felt would be adverse for my back problems, so I stopped it.

      I live alone now since my husband passed away last year.  My pain doctor’s office is on the opposite side of town from where I live, but I don’t want to lose him.  We have developed a mutual trust.  we have a contract and I have no problem giving a urine sample whenever he wants it to see if I am following our agreement.  I worry that I may have to move someday to be closer to family, or worse into assisted care where I won’t have a doctor that understands my situation and takes all of these governmental guidelines as gospel instead of giving best treatment.

      I am very careful and understand peoples concerns about opioid addiction.  My sister died of an overdose.  She had broken her back, had two failed surgeries and in the 90’s had a doctor  that gave her whatever she wanted.  She went through rehab twice. She was not only on opioids, but also anti-depression and anti-anxiety meds.  Unfortunately, she overdosed in 2017.  I hate taking opioids.  I get no high or good feeling, but I do get relief from constant pain and have to deal with the side effect of constipation.

      Your comments are right on and I am hopeful that the people who make the rules and write the recommendations can understand theater one size does not fit all.

    • Pam Mullvain Pam Mullvain United States says:

      I am in a very similar situation and I've often said that I pray, and I do pray, that my current pain management Dr doesn't retire until I die!!!!

    • Dave Seth Dave Seth United States says:

      People who are suffering most are the ones who still suffer. This opioid war (so called) has done ZERO to deter substance abusers but unrepairable damage to chronic pain suffering. Thank God I found Kratom it's been a lifesaver!

    • Harriet Pearson Harriet Pearson United States says:

      You nailed it! I would take this one step further. This coming from a country letting fentanyl flow like water over our boarders is rich. In many cases taking away pain meds from a patient who truly needs them and has demonstrated responsible usage should be left alone. Doctors not properly addressing pain in a timely manor or assuming it's psychosomatic is why people turn to street drugs. There are hundreds dying daily from fentanyl OD's. But, patients with long term diseases causing terminal pain those people they worry about opioid abuse and addiction. Our government and medical profession need to rethink their priorities.

The opinions expressed here are the views of the writer and do not necessarily reflect the views and opinions of News Medical.
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