Opinion

... in response to Gene therapy for retinitis pigmentosa
  1. Vitamin A Palmitate & DHA
    Heidi Heidi United States says:
    September 21, 2011 at 12:49 PM

    I was diagnosed with RP, Usher II when I was 32 (8 yrs ago) and was told to take vitamin A palmitate, which I didn't because I wanted to have babies and I did have my babies first.  Now, I was tested and have lost so much vision.  I'm taking it more seriously now and take vitamin A(15,000 IU) and DHA 200 mg. to help slow down the disease so I don't lose more than I have to.  If I had taken these when I was younger (in between babies) I probably would of slowed down the disease more and have had more vision still.  I wouldn't trade my babies for any amount of vision, but I am very faithful at taking my vitamins now.  I don't want to lose my vision either.  I have 7 kids of my own and 2 stepchildren.  I want to see my grandbabies' faces and all those things you take for granted when you have vision.  I am hoping for a cure or treatment and would be so happy if they could figure out how to stop any more loss and I could keep what vision I have left.  Enjoy every day and every sight while you have it!  They are blessings that some don't realize how precious they are.

    Reply
    • How much Vit A for an 8 year old ?
      zarina zarina Malaysia says:
      November 10, 2011 at 12:32 AM

      Hi Heidi,

      My son has been diagnosed with RP , he is 8 but I can clearly see the symptoms , he has fallen many times and received stitches , we the parents, did not suspect that it was his vision. We feel very bad . How much vitamin A can i give him per day ? woudl you know ?

      zarina from malaysia

      Reply
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