Opinion

... in response to New procedure to treat pseudotumor cerebri
  1. 2 shunts and tbe pain is back
    Sherri Mendenhall Sherri Mendenhall United States says:
    January 25, 2014 at 1:11 PM

    I was diagnosed in 2009, I'm allergic to diamox so that option was out quick.  In 2010 i received my first VP (ventricular peritoneal) shunt, which had to be revised in 2011 due to scar tissue.  After my first surgery the relief was immediate and amazing, I honestly had no idea how much pain I had been in until it went away.  Unfortunately I have had a very hard time getting the weight off, primaryily because it is hard to exercise with the vertigo and double vision.  I have been having spinal taps every 2 - 3 months where they pull off 40ccs.  I really dont want to crack my brain open again for yet another revision.  Has anyone actually had this stent surgery and if so how is it working out?  I am reallt tired of the pain, vertigo double vision and "gray" vision zones that come along with this.

    Hopeful in the NW

    Reply
    • Stented in the UK
      Karen Pooley Karen Pooley United Kingdom says:
      March 2, 2014 at 9:46 AM

      Hi Sherri,
      I had my first stent back in 2000, this procedure is not new here, my second one was placed in 2001 and I had eleven years where things were pretty damn good The operation itself is non invasive in comparison to having any kind of shunt fitted, the stent goes in through the neck and I was only required to stay in hospital overnight.
      I have since had three more stents placed as in 2012 my pressures went up again, have to say though I haven't had to worry about infections or revisions, so very happy being stented, I hope this small piece of information helps you x

      Reply
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