1. HLHS Nana
    Donna Donna United States says:
    September 19, 2012 at 12:02 PM

    We had a similar situation; my granddaughter was born with HLHS, which we also didn't know, also only because of low blood sugar taken to NICU and found; taken to UAB kept on prostaglandin and listed for heart transplant 1A, where still waiting but keeps getting sick with fevers. mom was given ultrasounds if that's what's meant by scans but has to be a specially trained person, is what I've been given to understand; the ones who did I don't think were but they just keep saying everything was fine on them but no way

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