1. LE and early prevention
    Virginia Pfau. RN Virginia Pfau. RN United States says:
    August 4, 2010 at 4:44 PM

    I developed LE 2 days post radiation after a Lumpectomy and Sentinel Node Biopsy for Stage I. I had to find my own information and my own CLT. My surgeon's office told me I had to wait 6 weeks to see a therapist. I was in treatment in 4 days thanks to me. I found lymphnet.org, and they were a great help. I have had 3 Cellulitis in 4 years. One was extreme from breathing toxic paint fumes. It has taken 5 years to educate my surgeon, her NP, and my medical oncologist, with printed research from NLN. So to find another website that can offer support was a very important thing for e today. Since I help other BC patients with LE. At present I have a man in his 60's with post BC LE.

    Reply
    • Lymphedema for Virginia
      tina budde tina budde United States says:
      August 7, 2010 at 9:59 AM

      Hi Virginia, feel free to join my support group for lymphedema, Lymphland International Lymphedema Online (LILO) we have members from all over the world, therapists, doctors, etc.  We keep up to date with all the latest developments on lymphedema, as well as have a chat room, and someone is most always there to answer questions or to help.

      http://www.lymphland.com/

      Reply
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