Rebeccah, your story has me in tears.  My warmest wishes for health to your family.  My son began his fevers at age 2 and is 3 years old now.  His pediatrician has little knowledge of FPAPA therefore I feel I have no where to turn. Five months back a specialist diagnosed him and since then prescribed Orapred to give at onset of fever.  This usually works very well and fever disappears.  This time, my son had 3 episodes of fever in a span of 5 days.  Is there any other options? Its been so difficult to witness a little child go through something like this.