1. I have Erdheim-Chester Disease and genetic info may help me find a cure
    Laurie Belvin Laurie Belvin United States says:
    January 27, 2024 at 12:18 AM

    I have an ultra-rare cancer, Erdheim-Chester Disease.  As yet, the mutations that cause my cancer have not been found.  I am taking a targeted chemotherapy that seems to keep it from replicating itself, but a cure would require better understanding my genetics to start. Please consider a clinical trial or research for those of us with this deadly cancer.  I am Laurie in Florida with. ECD.  Dr.Diamond at Sloan Kettering would be your best contact for info.

    Reply
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