1. What a waste of a study :/
    Nate Lee Nate Lee United States says:
    February 5, 2010 at 8:21 AM

    This seems like a complete waste of a study. If a family already has a history of SMA they can choose to get screened anyway - why do we need a study saying that we can? Isn't screening supposed to be for things that a family and their care providers may not expect? Disheartening.

    A more honest assessment would be, screening isn't cost effective b/c SMA is terminal.  Just say it honestly. So, again, is it being determined that it is appropriate to ration services to the SMA population b/c SMA is terminal. Thanks.

    Reply
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