1. Puzzled! Broken Heart Syndrome
    J Charmer J Charmer United Kingdom says:
    December 20, 2009 at 12:46 PM

    I was rushed into hospital with a suspected massive heart attack, symptoms soon subsided and I was admitted into hospital and put on the cardiac unit on the 21st November, 2008.  I was taken down the next day to have a vein put into my heart where I was told that my arteries were all perfectly healthy but was diagnosed with Broken Heart Syndrome. Although the specialist himself diagnosed this the actual Doctors dealing with me didnt seem to have much clue and continued to advise me that I had a heart attack. I was on all medication that is given to heart attack and indeed they made me feel pretty unwell for several months later.

    Since this I attended Cardiac rehab, although was told later by the specialist that it would benefit me mentally but I didn't really need it as I did not have a specific heart disorder like heart decease.....since I was only 48 at the time, I attended this class with mostly elderly men but it was fun and I learnt alot about the heart that I was not aware of, such as eating and exercise.  
    I went to the Specialist in April, 2009 and had several checks and was told my heart had totally repaired and to go away and live a healthy life.......good news, as apart from a 75mg Aspirin and a statin that is all I have to take now.
      
    I has stressed out at the time of having this attack and I am menopausal, having hot flush etc., I have got on with my life and tend to put it at the back of my mind, sometimes I might have a little panic attack mainly because no-one seems to know much about it or the correct treatment. Its difficult when you are enquiring about insurances etc., because it dosent seem to be recognised, infact having to take the laughter and sighs when they hear you have Broken Heart syndrome and not a Broken Heart dosent allow you to get to serious about the condition.

    I would like to know more, I have searched the internet and every site going, my Doctor knows very little but said after reading the Specialists notes that I had nothing to worry about and that also helped with my general well-being.  

    I was told it rarely happened twice so was surprised to see that it has, I will be a little bit more aware of that now in the future.
    All in all, it was a terrible event to go to and I wouldnt wish to have it again, it would be great to know more and it was lovely to read your individual experiences.

    Reply
    • Insurances Codes for Takotsubo is:
      Cecilia Cossote Cecilia Cossote United States says:
      January 21, 2010 at 12:45 PM

      J Charmer, I just found this for insurance codes at wikipedia for Takotsubo Cardiomyopathy.

      ICD-9       429.83
                 (http://www.icd9data.com/getICD9Code.ashx?
                  icd9=429.83)

      DiseasesDB  33976
                 (http://www.diseasesdatabase.com/ddb33976.htm)

      MeSH        054549
                 (http://www.nlm.nih.gov/cgi/mesh/2009/MB_cgi?
                  field=uid&term=054549)

      Reply
    • Takotsubo Syndrome
      sajarn sajarn United States says:
      May 16, 2010 at 11:17 AM

      I too had Takotsubo Syndrome or Broken Heart Syndrome when I was 42 years old.  I am an RN and was lucky to have been life-flighted to a trauma center 30 miles away and lucky to have been placed with a cardiologist who suspected Takotsubo myopothy at the time.  The other doc's told me I had a massive heart attack when I awoke froma coma 10 days later but were confused because I had no heart damage.  Let me say also that I had a physical with blood work 2 weeks before the occurrence with a clean bill of health. I was transferred to the place where I was a Unit Manager at the time of occurrence and had intense physical therapy and was back to work 3 months later cause that's what I needed to do to support my family.  (I am a divorced Mom) and started with only 2 days a week then quickly went to full time again because it is what it is.  It will be 8 years in November and I now find myself faced with other issues and will be evaluated by a neurologist on June 3rd to rule out a movement disorder ( Parkinsons, etc).  I would love to hear from other who have experienced this and Good Luck to you friend, Sandy

      Reply
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