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... in response to What is Bardet-Biedl Syndrome?
  1. Maria De Losangeles Zuluagaotero on What is Bardet-Biedl Syndrome?
    Maria De Losangeles Zuluagaotero Maria De Losangeles Zuluagaotero Colombia says:
    August 16, 2013 at 2:23 PM

    tengo dos hijos con síndrome de bardet bield ,quiero saber que tratamiento hay para la retinitis pigmentosa,los médicos que los ven solo se preocupan por que bajen de peso,pero acerca de los ojos no nos dicen nada .Me preocupo ya que mi hijo mayor tiene la vista muy escas y a diario se cae y me duele que este asi,si tienen algun aliciente o alguna respuesta espero y la comuniquen mil bendiciones.

    Reply
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