1. Hope they find answers
    Rebeccah M Rebeccah M United States says:
    December 16, 2012 at 9:54 PM

    Really hope better treatment can be found and doctors can be better educated in diagnosing and treating PFAPA.  I have four little boys who have suffered with this since each was just a few months old.  Finally my oldest outgrew it.  I don't think I could handle any more with this.  My little guys fight fevers of 105-108, two have suffered multiple seizures, and all have had to miss out on so much in life . For my children it has sometimes been a fight for their lives, so THANK YOU to you doctors and scientists who study to find answers to our children's suffering.

    Reply
    • on the same boat
      Adriana Cardenas Adriana Cardenas United States says:
      February 25, 2013 at 1:00 PM

      Wow! God bless you with your four little ones.  It is difficult enough to deal with one child going through this.  Have you tried the removal of their tonsils.  I am still not sure what to do with my little one.

      Reply
    • t isl on Scientists identify new treatment to combat PFAPA syndrome in children
      t isl t isl United States says:
      April 26, 2014 at 8:39 AM

      Rebeccah, your story has me in tears.  My warmest wishes for health to your family.  My son began his fevers at age 2 and is 3 years old now.  His pediatrician has little knowledge of FPAPA therefore I feel I have no where to turn. Five months back a specialist diagnosed him and since then prescribed Orapred to give at onset of fever.  This usually works very well and fever disappears.  This time, my son had 3 episodes of fever in a span of 5 days.  Is there any other options? Its been so difficult to witness a little child go through something like this.

      Reply
The opinions expressed here are the views of the writer and do not necessarily reflect the views and opinions of News Medical.
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